Lalala

Ok it has been a while since i last blog but boy do i have a hard time deciding what template to use on blogger and wordpress...!! -__-"

However i am currently at home healing from painful sore throat and ear infection. A horrible combo i must say..

haha ;D

This is just soooo me! I would totally do that! muahahahah :p

HAPPY NEW YEAARRR :)

It's a brand new 2013 and my blog is supposed to be alive a few weeks ago but because my office does not allow me to view the blogger page then i can only blog at home..or probably set up the blog by email thingy..new things to learn considering my last blog was like ages ago.

So as i am writing this i am at home on MC with the worst stomach pain ever. Its like diarrhea pain that continues on on and when you go to the loo there is literally nothing coming out. Well doc says its probably 'salah makan' yesterday but hell it hurts so bad. Got a painkiller jab and the pain only subsides like 5 hours after that T_T

So happy new year everyone! New year new start new everything. To recap, i was on and off sick in 2012. The last 3 weeks before new year i was hospitalised because i was having on and off fever for 2 weeks complete with dizzyness headache and nausea all.. No im not pregnant (Yeah i got married) , i was just sick. My left leg that had the blood clot is still not healing properly. Still getting the eodema and tiredness. Now trying on a new drug -NSAIDs called Cataflam. Hopefully this will settle my condition.

Oh and the last post about the joint pain - it was actually a blood clot! Deep vein thrombosis (DVT). The one that you can get if you don't move your leg in the plane, etc. Yeah that one. Painful as hell and admitted to the hospital for that. Was on Prednisolone for about 8 months and gained freaking 8kg (from 53kg to 61kg). Did calorie count and managed to get weight down to about 56kg during wedding and lost some more to 53kg. But then put on 2kg so back to calorie counting to lose to 51kg. My actual ideal weight. So far so good i am down to 54kg in 1 month and i want to reach my target by end of March.


And...i cut my hair to a short bob (^_^)   

There is actually so many things to update but i have already forgotten about it now heheh (",)



Well, many blogs to come so to be continued...

My first taste of joint pain

I am currently on MC and have been on MC for the last 3 days. It started sort of like a leg cramp. I thought maybe i have injured myself when i last use the treadmill. Apparently not because after 5 days the cramp became really painful and i can see that the back of my knee is swollen. Off i went to a clinic at 6am in the morning because i cant stand the pain and when i told them that i did not fall down and mentioned that i have SLE, the doctors were like there is nothing we can do for you except to give you painkillers and rest until the pain go away. Lupus is attacking my joints since i did not injure myself.

Now let me tell you joint pain is really super freaking painful!!! :( i cannot even sleep and i actually feel like crying the whole time! The pain is really debilitating. I cant even stand up and not feel painful. Even putting my feet down for a sitting position is painful. I can only feel comfortable with my feet straight like melunjur like that or elevated. I have never ever experienced a joint pain before but now i know how painful it can be. Arthritis is really painful. Since i cant even stand up without feeling tremendous pain imagine trying to walk bit by bit. It takes a lot of effort and strength to just bear with the pain. What an ordeal!

so what did i do during these last 3 days? Literally resting my feet up and sleep and rest and sleep. I cant really do anything else right except to watch tv and surf the internet. Even taking shower is a chore. I need to put my feet up every now and then. Its quite tiring too move around too.

Initially, i didnt know what to do except that i know that i cannot walk around. Today is a bit better and i've made an appointment to see my rheumatologist on monday. My face is more puffy this week as well.. :(

Lupus: What really happened

I thought i would add to this one since every piece of blog is too long to write at a time. I mean i dont want to write a whole long blog to explain a whole long list of what happened.

Let us recap the eventful turn once again:

I was lethargic with extreme mood swings. I had difficulty swallowing, sometimes difficulty in breathing because my throat feels tight and my jaw hurts. My face was utterly puffy until I look quite different from normal. I was exercising but instead of going down my weight went all the way up. I was really irritated and uncomfortable even on the smallest thing. I also had painful heartburn.

Now my normal face is actually like this. As you can see the swelling and puffyness was extremely awful. People might think that i've gone fat or something but i was actually really sick. Its all swelling and fluid retention.

Like i said, i went to a number of clinic and ENT but none of them can ascertain what happened to me. For them because there is no sign of infection, they just gave painkillers and anti-inflammatory pills. The diagnosis came from my brother as he is a consultant radiologist in UH and he found that my glands were swollen and so did the subcutaneous tissue surrounding it.

The rheumatologist at first thought it is just Sjogren Syndrome because of the apparent symptom of the swollen parotid glands but further tests has shown that i have a high dsDNA which is only apparent in LSE sufferers.

 The steroid pushes the swelling down and my face is back to normal. My girth is also loosening and my weight is down to 55kg. My normal weight would be around 52-53kg usually so i have to try to loose another 2kg or at least maintain it since steroid's long term effect is weight gain and fluid retention as well. Its a double ended sword for me but i need it to suppress my flares for now.